Sunday, February 20, 2011
Sleep study
We got back about 8.00 this morning after Saira's sleep study well it turns out she didn't actually have a sleep study it was just a Pulse oximetry test, for some reason they said she was too young for a sleep study, but after consultation with the doctor today they are going to try and set up a proper sleep study for her. Anyhow we left before her doctor came in this morning, Saira was awake and I wanted to get out of there and home as quick as possible. The night was pretty awful for me, only because I kept looking at that silly machine the entire time and the funny thing is that this is the way she sleeps every night but because I don't have some machine showing me counts I don't really know what's going on and well it doesn't disturb me as much as it did last night. Her saturation levels were playing havoc, anything between 99 down to 62 and this carried on the entire night, up and down, everytime it went below 79 and the machine started beeping red I was up and pacing her bed. Saira also slept very very restlessly which she does anyway but last night was worse because of the strange bed which wasn't as comfortable as hers and it was an adult size bed so I had to keep moving her as she kept managing to roll uncomfortably close to the edge of the bed, I know the bed had a side guard but I think she would probably have been able to slip through them. The on-call doc did say this morning that he didn't like how much her levels fluctuated and something needs to be done immediately. Later this morning I spoke with her ENT and he has asked us to come in for an x-ray of her tonsils and adenoids tomorrow, he wasn't happy with her O2 levels and we need to discuss this further. Whatever the reason for this happening I need to get to the bottom of it as soon as possible, just the thought of what's happening to her each and every night when she sleeps is really scaring me now. In the meantime I asked if there was something we could do to ease her condition, something that would give her immediate relief of some sort at night but apart from some oral drops, a sort of anti histamine as her nose is really runny as well which might help her a bit while she sleeps but other than that nothing else right now. I guess we'll know a little more tomorrow.
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11 comments:
Wow! that would scare me too. maybe it is something as simple as her adenoids. That would be great. Tina I hope you resolve this quickly. I know you probably won't get much sleep until you do.
Love and hugs!!
Sorry that you had such an awful night! Prior to my son's open heart surgery, I used to stay awake at night listening to his erratic breathing. I know how frightening that can be. Praying that you get some answers soon!
That sounds so stressful & scary! I hope they can resolve it quickly for Saira.
If it was just a pulse oximeter, they also have to make sure the monitor was reading right when her sats dropped that low. Those machines are super finicky!
You know you can email me again for any other questions!
Hope that you get some answers soon. And I commiserate with your sleepless night--I can't stand sleep study nights!
I felt so sorry for your daughter. My daughter has hypothyroidism too but she's 25 years old and taking porcine thyroid for almost 5 years. Now, she has her own family and so happy that hypothyroidism didn't affect their children.
Hi
Saira
My name is Jenna and I came across your site. U are a brave courageous fighter and and a hero. I love your smile. I was born with a rare life threatening disease. My site: http://www.miraclechamp.webs.com
I love it when other people sign my guestbook or email me.
All we need is a couple of rest and expect tomorrow a good day. Thanks for sharing this post.
Medicine Reminder
praying all is well..have not seen a post in a while..wondering what doctors decided to do with sleep study results..our two have had sleep studies and tonsil/adnoids removed..greatly helped.
But our little girl is still on o2 at night for sleep apnea.
It is best to go down the depths of a problem till you understand a cause specially when it is an ailment in the body.Hope she gets well soon.
Thanks for a great blog
Papillary Thyroid cancer
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